B.C. woman speaks out about living with rare, stigmatizing genetic condition

A Port Moody, B.C., woman is speaking out about a rare and stigmatizing genetic condition in the hopes of raising awareness. Kirsten Anne was diagnosed with neurofibromatosis when she was only two years old. “So, I don’t really know what it is like to not have this,” she told Global News. Neurofibromatosis, or NF, Type One, affects one in every 2,500 Canadians. It is a rare genetic disorder that causes the uncontrollable growth of non-cancerous tumours on the nerves. “It can also impact your hearing and vision, you can have scoliosis, bone deformities, airway blockages, you are at higher risk …